STABLE Pilates for Hypermobility
Purpose
This study is looking at whether Pilates-based exercise can help with hypermobility-related symptoms, like pain.
Conditions
- Ehlers-Danlos Syndrome (EDS)
- Hypermobile EDS (hEDS)
- Hypermobile Spectrum Disorder
Eligibility
- Eligible Ages
- Over 18 Years
- Eligible Sex
- All
- Accepts Healthy Volunteers
- No
Inclusion Criteria
- ≥ 18 years old; - Self-reported hypermobility with confirmed or suspected diagnosis of hEDS/HSD; - Self-reported persistent pain ≥ 3 months; - A minimum of 3/10 self-reported pain intensity in the past week - Able to get on and off the floor without assistance; - Able to communicate fluently in English; and - Able to provide written, informed consent
Exclusion Criteria
- Regular ongoing mind-body practice (e.g. Tai chi, yoga, pilates) defined as a regular weekly practice of at least 20min/week over the past 6 months; - Recent surgery or acute bone, joint or nerve injury (<6 months); - Have a history of a severe or progressive neurological or movement disorder; - Pregnant, planning to become pregnant during the study, or currently breast feeding; - Unable to get on and off the floor without assistance; - Unable to complete study procedures due to cognitive impairment; - Unable to provide written, informed consent; or - Currently participating in or planning to participate in another physical activity, mind-body or pain-related intervention research study in the next 4 months.
Study Design
- Phase
- N/A
- Study Type
- Interventional
- Allocation
- Randomized
- Intervention Model
- Parallel Assignment
- Primary Purpose
- Treatment
- Masking
- None (Open Label)
Arm Groups
| Arm | Description | Assigned Intervention |
|---|---|---|
|
Experimental Pilates |
6 weeks of once weekly in-person Pilates-based exercise classes |
|
|
Active Comparator Enhanced Usual Care |
6 weeks of once weekly educational seminars pertaining to hypermobility symptom management |
|
Recruiting Locations
Brigham and Women's Hospital
Chestnut Hill, Massachusetts 01467
Chestnut Hill, Massachusetts 01467
More Details
- Status
- Recruiting
- Sponsor
- Brigham and Women's Hospital
Detailed Description
In this study, investigators are looking at whether 6 weeks of Pilates-based exercise led by a licensed physical therapist can help with hypermobility-related symptoms, like pain. Pilates is a gentle mind-body exercise with an emphasis on muscular control, postural awareness, and breathing that may be particularly well-suited for managing hypermobility. Exercises are mostly floor-based and focus on developing muscular strength and stability which may improve pain and symptom management.